Monday, October 27, 2008
The video picks up again the next day at Childrens hospital in the NICU. We did alot of taping in the hospital, I wanted to have a good record of everything so Maddy would know her birth story, and with everything happening so fast I didn't trust my memory. We have done alot of video and pictures since we got home, every first has been recorded, just as it was for Tristyn when she was born.
Saturday, October 25, 2008
Thursday, October 23, 2008
Wednesday, October 15, 2008
Maddy has been eating infant cereal for about 2 weeks now. The fist couple times she only ate a few bites and was like "what is this goofy stuff" Well, last night she decided that she loves the stuff. I couldn't shovel it in fast enough. By the time I reloaded the spoon she had her mouth open waiting. :) She's learned how to blow bubbles now, and she tried to do it a few times with her mouth full. So, instead of blowing cute bubbles, she blew cereal all over mommy. Oh well, it was so cute that it was worth it!!
Monday, October 13, 2008
I look to them and smile.
You see, my child is
loved so much,
I would face ANY trial.
That scar I trace with
It's the door to her
God must have known how
much we'd love her,
Just as He loved her from
Do you have a favorite poem? Please share!
Wednesday, October 8, 2008
Look how nice my boo-boo is healing - 16 weeks old
Monday, October 6, 2008
Maddy was taken by the Spirit of Marshfield ambulance to St. Joseph’s in Marshfield, she arrived here around 4:00am. Tony left and met Maddy in Marshfield, I wasn’t able to leave the hospital yet, so I had wait. Before she left, the nurses gave us some Polaroid pictures they had taken. I later learned that these are called “just in-case pictures”. In Marshfield she saw Dr. Dyke, he did several tests, ultrasound, echo, etc. and she was officially diagnosed with Transposition of the Great Arteries (TGA).
In a normal heart, oxygen-depleted "blue" blood is pumped from the right side of the heart, through the pulmonary artery, to the lungs where it is oxygenated. The oxygen-rich "red" blood then returns to the left heart, via the pulmonary veins, and is pumped through the aorta to the rest of the body. With TGA, blue blood from the right heart is pumped immediately through the aorta and circulated to the body and the heart itself, bypassing the lungs altogether, while the left heart pumps red blood continuously back into the lungs through the pulmonary artery. In effect, two separate circulatory systems are created. Maddy was born with "Simple" TGA, meaning TGA was the only heart defect. Although it may seem illogical, babies born with "Complex" TGA have a better chance of survival. This is because with they have other defects such as a ASD, VSD (holes in the heart) which allow for mixing of the blood. Maddy did not have this advantage, she had no mixing of the blood and her PDA was very small. Therefore she needed an emergency stent (hole) put in her heart, just to survive long enough to have the surgery to correct her TGA.
A few hours later she was then taken to Children’s Hospital in Milwaukee. The doctors really wanted to air lift her there, but the weather was just too foggy. She arrived in Milwaukee around 9:30am on May 2nd. She immediately had a Balloon Atrial Septostomy, and Dr. Berger put a stent in her heart, she was about 11 hours old at this point. A stent is a man-made hole between the chambers, this allowed her blood to mix. This stabilized her and we were able to wait a few days and let her gain some strength before surgery. This is where I was finally able to catch up with her again. I was discharged from the hospital and we made the 3.5 hr. drive to Milwaukee, not very comfortable only 10 hrs after giving birth! We arrived shortly after her stent was put in. We were later told that the ambulance ride was very tough on her, she coded twice and the attendants were afraid she wasn’t going to make it. The stent made a world of difference, the next time we saw her she was nice and pink. The day after the stent was put in she had an episode of apnea, where she stopped breathing. I have never heard so many alarms and seen so many nurses come running. They determined that this was a side effect of one of the drugs she was on. To keep this from happening again she needed to be put on a CPAP machine. This stands for continuous positive airway pressure. This is a small device that fits over her nose & was held in place by a fabric, helmet like, harness.
On Monday May 5th Dr. Tweddell preformed the Arterial Switch Surgery (Jatene procedure) and put the arteries back where they should be, she was 4 days old. It was a long surgery, almost 7 hours, but she came through with flying colors. She recovered very quickly and on May 13, at 12 days old, Maddy was able to come home.
Maddy is now a happy and healthy 8 month old who just celebrated her first Thanksgiving and Christmas. She will need life long cardiac care to watch for leaky valves, narrowing arteries at the re-connection sites, and irregular heart beats, but her outlook is great thanks to the wonderful care she received. Tristyn is 4 years old & loves her little sister, the first thing she said was “Mad-o-lin is shiny and new”. Poor Tristyn was a trooper during all of this. She had no idea why she was suddenly abandoned at her grandparents house for almost 2 weeks. She was able to come & visit us once and that was wonderful, because I really missed her. Maddy and her sister Tristyn are both precious blessings from our Lord Jesus. Our family has been blessed with two beautiful daughters and we treasure each day.
Friday, October 3, 2008
I'll start with Tristyn since she is the eldest. She was a very easy baby, and it started with a very easy labor & birth (only about 3 hours). She was always very content and slept through the night starting at 8 weeks. We became concerned about her gross motor skills when we noticed she was way behind other babies her age. She didn't roll until 5 months, sit up - 9 months, crawl 13+ months, walk 18+ months, etc. She was enrolled in the birth to 3 program and they helped her out alot. One of the problems they found was that her joints were hyper flexible. At 2 1/2 years old she was still only using simple words - mom, dad, ball. So we also started speech therapy for her. She graduated from the program at age 3 and we started her in a early education program. This was the best thing we could have done, in 1 years time from age 3-4 she has progressed so much. Last year she went three 1/2 days a week, and this year its five 1/2 days. Since we live in the country she gets to ride the school bus and she is so excited for it every morning.
When Maddy was born Tris was a little traumatized. I believe it was mostly because all of a sudden Mom & Dad disappeared for 2 weeks and she was sent to Grandmas house. Tris was able to make the 4 hr trip to Milwaukee to visit us 2 times, which was nice. It amazed me how much I missed her, and it seemed like she grew a whole lot in those few days I didn't see her. Maddy was 7 days old when Tris got to meet her. The first thing she said was "baby Maddy is shiny and new" it almost made me cry. Since bringing Maddy home Tristyn has adjusted, she is learning how to be gentle, but still needs to be reminded often. She is very good at making Maddy giggle, it is so neat to watch the two interact.
Take care & God bless!
Thursday, October 2, 2008
This picture was taken after the stent was put in, you can really see the differance in her color, she is much pinker!
A few minutes after this was taken to get ready for surgery.
Here are some post surgery pictures
Tristyn meeting Maddy for the 1st time
May 12, getting ready to come home